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Data on pain management outcomes for women with endometriosis is not held by Scottish Government.

Endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so. We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

We are committed to our ambition to improve the quality of life and wellbeing for people with chronic pain. The for the Scottish Government’s Pain Management Service Delivery Framework, published in November 2023, has 18 actions to improve care and support for people living with chronic pain.

In November 2024, we launched our national chronic pain knowledge hub and learning toolkit, available to all NHS Scotland Health and Care staff to deepen their understanding of chronic pain.

In addition, we have also funded Endometriosis UK to produce a booklet and two webinars on self-management tips for managing endometriosis pain.

Endometriosis UK also operate a free, confidential run by trained volunteers who have a personal experience of endometriosis and have expanded their helpline provision by launching a on 28 January 2025 providing further sources of support.

The Scottish Government is providing investment of over £19.5 billion for health and social care in 2024-25 and supporting delivery of the specific actions relating to women’s health as we continue to drive forward the implementation of the Plan.

The Scottish Government provides this baseline funding to NHS Boards, to best meet the healthcare needs of their population, including for women with endometriosis.

Endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so. Through the implementation of the Women’s Health Plan we have established Women’s Health Lead Network with a Lead in every NHS Board. The Network enables the Leads to identify both common and local challenges and exchange ideas on innovation and best practice, along with discussions on progress to implement the Women’s Health Plan priorities at local level.

NHS 24 use qualitative and quantitative data to evaluate, review and optimise NHS inform content. This includes, for example:

• analysis of user activity on their website
• user feedback
• user research
• user testing
• partner and community engagement feedback
• 111 call trends

NHS 24 conduct regular audits and reviews to ensure accuracy, relevance and clarity of content.

This information is not collected. Collation of this information would require the gathering of personal data.

It is vitally important that all information on NHS Inform, including any linked websites, is open and accessible. All of the linked websites on NHS inform must be free to access without a need to login or register to ensure there are no barriers to access.

Data regarding post-diagnosis referral to fertility services is not held by the Scottish Government.

As set out in the for NHS Scotland, clinicians should consider women’s individual needs in order to determine treatment, for example symptoms, aspects of daily living and whether fertility is a priority for that individual. The Pathway notes that discussions regarding fertility should happen in the first presentation and that management and long-term impact including fertility should be discussed during initial assessment.

We are continuing work to improve the data we have on women’s health so that we can better understand the health of women and girls in Scotland – including endometriosis.

Information on women’s health data in Scotland can be found in the recently published . It sets out the range of publicly available data on the health of women in Scotland and highlights where there appear to be gaps. Further work will be undertaken to explore data sources and gaps in more detail.

The for NHS Scotland aims to support healthcare professionals to provide holistic and timely care for those with endometriosis and endometriosis-like symptoms. All NHS Boards should be taking steps to implement the pathway.

As set out in the Pathway, clinicians should consider women’s individual needs in order to determine treatment for example symptoms, aspects of daily living and whether fertility is a priority for that individual.

Through the actions set out in our Women’s Health Plan we have taken steps to support both women and health professionals to learn more about endometriosis, the symptoms and treatment options to support earlier identification and minimise time to diagnosis.

The NHS Inform endometriosis page acknowledges the importance of emotional support and provides links to local peer-to-peer support groups.

There are also national helplines including 111, Breathing Space and The Samaritans.

In addition, we have also funded Endometriosis UK to produce a booklet and two webinars on self-management tips for managing endometriosis pain.

Endometriosis UK also operate a free, confidential run by trained volunteers who have a personal experience of endometriosis. Endometriosis UK have also expanded their helpline provision by launching a on 28 January 2025

Endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so. We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.

The Scottish Government does not hold data on the number of NHS health professionals using the NHS Education for Scotland in patient consultations.

As part of the implementation of the Women’s Health Plan, an NHS Education for Scotland educational resource has been developed and is free to access for anyone working in the NHS in Scotland via . The module includes a link to the questionnaire and guides the learner on how it can be used. We continue to work with NHS Education for Scotland to promote this training module among health professionals.

The questionnaire is also freely available to both patients and healthcare professionals through the NHS Inform .

Through the actions set out in our Women’s Health Plan we have taken steps to support both women and health professionals to learn more about endometriosis, the symptoms and treatment options, so that waiting times for diagnosis can improve.

Endometriosis has two stages of diagnosis, a working diagnosis at primary care level and a confirmed diagnosis via laparoscopy at secondary care. Not everyone with endometriosis will want to have a laparoscopy to confirm their diagnosis, particularly if their symptoms can be well managed.

We want people to achieve a working diagnosis as soon as possible to enable swift access to appropriate care and treatment. That is why the for NHS Scotland is clear and advises healthcare professionals to suspect endometriosis in women who present with one or more endometriosis-like symptom (including in young women aged 16 and under).

We know that excessively long waits for laparoscopy are not acceptable, and we apologise to all patients waiting too long. We are determined to drive improvements in this area and continue to work closely with NHS boards on a number of actions which will see patients treated as quickly as possible.

As stated in question S6W-32172 more information on women’s health data can be found in the recently published . It sets out a range of publicly available data on the health of women in Scotland and highlights where there are gaps which need to be addressed. This is just the start of our work to improve women’s health data. Further work will be undertaken to explore the data sources and gaps in more detail.

The for NHS Scotland supports healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms.

While there is no specific routine screening for Endometriosis, the pathway is clear and advises healthcare professionals to suspect endometriosis in women who present with one or more symptom (including in young women aged 16 and under).

Clinicians are advised to assess women’s individual information and support needs and take into account their circumstances, symptoms, priorities, priority for fertility, aspects of daily living, work and study, cultural background, and their physical, psychosexual and emotional needs.

All NHS Boards should be taking steps to implement the pathway.