- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Jenni Minto on 3 February 2025
To ask the Scottish Government, further to the answer to question S6W-32156 by Jenni Minto on 23 December 2024, what specific actions it is taking to meet the target of reducing waiting times for an endometriosis diagnosis to under 12 months by the end of the current parliamentary session, and whether it will provide examples of any NHS boards that have already seen significant reductions in diagnosis waiting times.
Answer
Through the actions set out in our Women’s Health Plan we have taken steps to support both women and health professionals to learn more about endometriosis, the symptoms and treatment options, so that waiting times for diagnosis can improve.
Endometriosis has two stages of diagnosis, a working diagnosis at primary care level and a confirmed diagnosis via laparoscopy at secondary care. Not everyone with endometriosis will want to have a laparoscopy to confirm their diagnosis, particularly if their symptoms can be well managed.
We want people to achieve a working diagnosis as soon as possible to enable swift access to appropriate care and treatment. That is why the for NHS Scotland is clear and advises healthcare professionals to suspect endometriosis in women who present with one or more endometriosis-like symptom (including in young women aged 16 and under).
We know that excessively long waits for laparoscopy are not acceptable, and we apologise to all patients waiting too long. We are determined to drive improvements in this area and continue to work closely with NHS boards on a number of actions which will see patients treated as quickly as possible.
- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Jenni Minto on 3 February 2025
To ask the Scottish Government, further to the answer to question S6W-32172 by Jenni Minto on 23 December 2024, what specific data points are being collected to track long-term outcomes; how often any such data will be reviewed, and for what reason it has not reintroduced routine screening for endometriosis, in light of the reported delays in diagnosis.
Answer
As stated in question S6W-32172 more information on women’s health data can be found in the recently published . It sets out a range of publicly available data on the health of women in Scotland and highlights where there are gaps which need to be addressed. This is just the start of our work to improve women’s health data. Further work will be undertaken to explore the data sources and gaps in more detail.
The for NHS Scotland supports healthcare professionals to provide a holistic approach and timely care for those with endometriosis and endometriosis-like symptoms.
While there is no specific routine screening for Endometriosis, the pathway is clear and advises healthcare professionals to suspect endometriosis in women who present with one or more symptom (including in young women aged 16 and under).
Clinicians are advised to assess women’s individual information and support needs and take into account their circumstances, symptoms, priorities, priority for fertility, aspects of daily living, work and study, cultural background, and their physical, psychosexual and emotional needs.
All NHS Boards should be taking steps to implement the pathway.
- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Jenni Minto on 3 February 2025
To ask the Scottish Government, further to the answer to question S6W-32165 by Jenni Minto on 23 December 2024, what specific support mechanisms are being implemented for women who experience prolonged delays in diagnosis beyond the general advice on NHS Inform.
Answer
Through the actions set out in our Women’s Health Plan we have taken steps to support both women and health professionals to learn more about endometriosis, the symptoms and treatment options to support earlier identification and minimise time to diagnosis.
The NHS Inform endometriosis page acknowledges the importance of emotional support and provides links to local peer-to-peer support groups.
There are also national helplines including 111, Breathing Space and The Samaritans.
In addition, we have also funded Endometriosis UK to produce a booklet and two webinars on self-management tips for managing endometriosis pain.
Endometriosis UK also operate a free, confidential run by trained volunteers who have a personal experience of endometriosis. Endometriosis UK have also expanded their helpline provision by launching a on 28 January 2025
Endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so. We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.
- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Jenni Minto on 3 February 2025
To ask the Scottish Government, further to the answer to question S6W-32157 by Jenni Minto on 23 December 2024, what specific metrics or indicators are being used to track the success of initiatives within the Women’s Health Plan for endometriosis care.
Answer
Information about the progress to date against each of the priorities in the Women’s Health Plan can be found in the .
As we move into the next phase of the Women’s Health Plan, we will consider how best to monitor and evaluate progress over time, which includes engagement with women who have lived experience of endometriosis.
As set out in the Women’s Health Plan, we know that there is a lack of data on women’s health – including endometriosis. Improving data has been one of the key priorities of the first phase of the women’s health plan, to understand the data that are available, the gaps and how we might address them.
The recently published sets out a range of publicly available data on the health of women in Scotland and highlights where there are gaps which need to be addressed, including endometriosis. This is just the start of our work to improve women’s health data. Further work will be undertaken to explore the data sources and gaps in more detail.
- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Jenni Minto on 3 February 2025
To ask the Scottish Government, further to the answer to question S6W-32169 by Jenni Minto on 23 December 2024, how it plans to ensure that there is continued investment in endometriosis research beyond the specific research calls listed.
Answer
We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care. Endometriosis will continue to be a priority as we develop the next phase of our Women’s Health Plan.
The Chief Scientist Office’s project and fellowship funding schemes continue to welcome applications from across the clinical spectrum, including in Endometriosis.
This funding source is well known across the women’s health research community. Applications looking at the diagnosis, treatment and management of Endometriosis are welcomed and (in common with all other applications) go through CSO’s rigorous independent expert review process to allow funding decisions to be made.
We have recently increased the number of research funding programmes run by the National Institute for Health and Care Research (NIHR) open to researchers in Scotland from 4 to 9 and have worked to ensure researchers across Scotland are aware of these opportunities. Most of these programmes are open to research across the clinical spectrum, including in Endometriosis.
CSO continues to fund the NHS Research Scotland Reproductive Health and Childbirth Network which supports the delivery of a number of Endometriosis-related clinical studies across the NHS here.
- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Jenni Minto on 3 February 2025
To ask the Scottish Government, further to the answer to question S6W-32159 by Jenni Minto on 23 December 2024, whether it has considered tracking and reporting how many women in each NHS board are using the menstrual health resource.
Answer
This information is not collected. Collation of this information would require the gathering of personal data.
It is vitally important that all information on NHS Inform, including any linked websites, is open and accessible. All of the linked websites on NHS inform must be free to access without a need to login or register to ensure there are no barriers to access.
- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Jenni Minto on 3 February 2025
To ask the Scottish Government, further to the answer to question S6W-32155 by Jenni Minto on 23 December 2024, what assessment has been made of the effectiveness of existing third sector helplines in meeting the needs of women with endometriosis; whether it has considered any potential benefits of a national helpline in ensuring consistent advice and reducing any burden on third sector organisations, and what the reasons are for its position on this matter.
Answer
The Scottish Government does not asses the effectiveness of third sector initiatives which it does not fund.
Through the NHS Inform Women’s Health Platform, we have made a range of freely available to women online.
This includes signposting to peer support groups and organisations such as Endometriosis UK who operate a free, confidential run by trained volunteers who have a personal experience of endometriosis. This helpline is available for anyone in Scotland to access. In addition, Endometriosis UK have expanded their helpline provision to include a which launched on 28 January 2025.
There are also national helplines including 111, Breathing Space and The Samaritans.
Through the development of the next phase of the Women’s Health Plan we will continue to engage with women to understand what support they want and need, including for endometriosis.
- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Jenni Minto on 3 February 2025
To ask the Scottish Government, further to the answer to question S6W-32176 by Jenni Minto on 23 December 2024, what percentage of women with endometriosis have reported improved pain management outcomes since the introduction of the Women’s Health Plan, and what actions are being taken to address any disparities in access to pain management services across different NHS boards.
Answer
Data on pain management outcomes for women with endometriosis is not held by Scottish Government.
Endometriosis is one of the key priorities in the Women’s Health Plan and will continue to be so. We are committed to ensuring those living with endometriosis are able to access the best possible care and support and that they benefit from healthcare services that are safe, effective and put people at the centre of their care.
We are committed to our ambition to improve the quality of life and wellbeing for people with chronic pain. The for the Scottish Government’s Pain Management Service Delivery Framework, published in November 2023, has 18 actions to improve care and support for people living with chronic pain.
In November 2024, we launched our national chronic pain knowledge hub and learning toolkit, available to all NHS Scotland Health and Care staff to deepen their understanding of chronic pain.
In addition, we have also funded Endometriosis UK to produce a booklet and two webinars on self-management tips for managing endometriosis pain.
Endometriosis UK also operate a free, confidential run by trained volunteers who have a personal experience of endometriosis and have expanded their helpline provision by launching a on 28 January 2025 providing further sources of support.
- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Jenny Gilruth on 31 January 2025
To ask the Scottish Government, further to the answers to questions S6W-32184 and S6W-32185 by Jenni Minto on 23 December 2024, how many young people engaged with the campaign; what measurable outcomes were achieved, and what steps have been taken to ensure that menstrual health, including endometriosis, is integrated into the school curriculum as part of standard health education.
Answer
A campaign report evaluating the in Scotland was provided by Young Scot in April 2023 which measured young people’s engagement with the campaign.
High engagement was achieved across the campaign webpages through social media and paid marketing:
- 2.3 million impressions which is the number of times a user sees a piece of content, regardless of whether they interact with it;
- 56,000 social media engagements which represents number of people interacting with the social media accounts and content; and
- 84,000 video views which reflects the number of times the video content was watched.
With regard to ensuring menstrual health, including endometriosis is included in the school curriculum, I refer the member to the answer to questions S6W-30034, on 3 October 2024, and S6W-32189, on 23 December 2024. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at /chamber-and-committees/written-questions-and-answers
- Asked by: Rachael Hamilton, MSP for Ettrick, Roxburgh and Berwickshire, Scottish Conservative and Unionist Party
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Date lodged: Wednesday, 22 January 2025
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Current Status:
Answered by Tom Arthur on 31 January 2025
To ask the Scottish Government, further to the answer to question S6W-32178 by Tom Arthur on 19 December 2024, what percentage of employers in Scotland have adopted the Menopause and Menstrual Health Workplace Policy, and what specific action it is taking to ensure that self-employed women with endometriosis are not excluded from workplace support initiatives.
Answer
The , launched on 31 October 2023, is for NHS Scotland. There are 22 NHS Scotland Boards, who have all adopted this policy (each being separate employers). There are 124,032.8 whole time equivalent (WTE) female staff working across NHS Scotland and women represent 77.1% of the NHS Scotland workforce as of September 2024.
The policy has supporting resources, including line managers, workplace adjustment guides, and signposting to more information on symptoms and conditions including endometriosis. These are intended for use more widely across a variety of employment sectors and are available on the National Wellbeing Hub, which is accessible to the public and self-employed women.
For self-employed women workplace support via income replacement benefits such as Employment and Support Allowance and Universal Credit, which provide financial support to people of working age who are unable to work due to illness, are fully reserved to the UK Government. However, our Adult Disability Payment provides financial support to recognise the additional costs of living with a disability or long-term health condition.
The health and wellbeing of women at work is a key element of fair work and we know that lack of support for women experiencing menstrual or reproductive health conditions can have a detrimental impact on their employment.
Our Fair Work First Guidance provides good practice examples for supporting women and allowing them to maintain their careers. For example, access to flexible working is of vital benefit to workers who may need to balance work with managing health conditions. Asking employers to offer flexible working from day one of employment has been a principle of Fair Work First since October 2021.