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We have recruited a multi-disciplinary cross-agency working group, including a broad spectrum of individuals involved in planning and commissioning services, to develop and implement a quality assurance programme for the General Standards for Neurological Care and Support. This has been led by Healthcare Improvement Scotland and will support health and social care providers to identify what they are doing well and where they can improve.

Undertaking this work will identify areas of good practice and improvement across NHS Scotland and help to drive forward better standards of care for people with neurological conditions.

We are also in the process of engaging with local leads in all Scottish health boards and Health & Social Care Partnerships, and exploring with them local priorities and scope for establishing leadership groups and a national practice sharing forum for neurology.

In 2021 we supported the Neurological Alliance of Scotland (NAoS) to produce three new ‘What to Expect’ information guides for carers of people with neurological conditions. These guides include information on carers’ rights under the Carers (Scotland) Act 2016 and comprise:

The guides were endorsed by the Coalition of Carers and are available at the NAoS website:

We are currently supporting the NAoS to undertake a project in early 2023 to work with carers centres assessing current resources and identifying gaps that still need to be addressed regarding information, training and signposting.

The Scottish Government see good accessible workforce data as a key tool for effective future planning within the Primary Healthcare Workforce. We have a number of ways in which we do this.

In General Practice, Public Health Scotland published workforce planning data through the General Practice Workforce Survey in November 2022 that gives us access to the latest General Practice workforce wte data, this is followed by the General Practice Workforce and Population Survey that gives us accurate headcount data across General Practice, published most recently in December 2022.

Workforce data on general dental practitioners is published by NES biannually, the latest data was published in December 2022.

The Centre for Sustainable Delivery intends to publish a report on workforce planning for the eyecare workforce by end March 2023.

Reporting arrangements are in place to monitor progress of Health and Social Care Partnerships against their Primary Care Improvement Plans (PCIPs). This includes progress on establishing Multi-Disciplinary Teams. Further information is provided in our annual statistical publication that published in March 2022.

In 2019, we published a , with a vision to ensure everyone with a neurological condition can access the care and support they need to live well, on their own terms.

Commitment 12 of the Framework aims to gather better data regarding neurological conditions. The Scottish Epilepsy Register project, funded through the Framework, is focussed on improving data collection and patient safety and driving up standards of care. We are exploring with NHS National Services Scotland proposals to scale up and consolidate the work of the Register, which may ultimately serve as a replicable model for other neurological conditions.

Scottish Burden of Disease data is also available on a number of neurological conditions including epilepsy, multiple sclerosis and Parkinson’s disease:

I further refer the member to answer S6W-13707 and S6W-13708 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at /chamber-and-committees/written-questions-and-answers

This work was agreed in February 2020 however was subsequently paused due to capacity issues related to the COVID-19 pandemic. It will be further considered by the National Advisory Committee for Neurological Conditions alongside our emerging priorities for implementation of the commitments within the .

I refer the member to the answer to question S6W-13716 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at /chamber-and-committees/written-questions-and-answers

Scottish Government has previously invested £180,000 in the development of a national care framework for Huntington’s Disease, with a view to the potential adoption of this approach in other neurological conditions. Our National Advisory Committee for Neurological Conditions will consider whether development of frameworks for additional neurological conditions should be prioritised as part of our ongoing implementation of the commitments within the .

Through the , Scottish Government and the Centre for Sustainable Delivery (CfSD) are improving referral pathways. The CfSD continues to work with neurological services to support the appropriate adoption of Active Clinical Referral Triage (ACRT) which ensures patients receive the right care in an appropriate setting, and Patient Initiated Review (PIR) which puts patients at the centre of their care.

The CfSD is working with Public Health Scotland towards capturing data in relation to ACRT and Discharge PIR, which will provide a better understanding of the scale, spread and potential further opportunity of these approaches.

The CfSD Neurology Specialty Delivery Group are developing a number of GP fact sheets for common neurological symptoms designed to support clinical triage by ensuring patients access the correct pathways in timely, robust and appropriate manner. These resources are intended to support good communication between secondary and primary care. They have been developed by a multi-Board expert group of primary and secondary care clinicians and are currently being prepared for national use.

Through our we are also funding condition-specific pathway work, in particular regarding Functional Neurological Disorder and migraine.

The Scottish Government funds health and care research largely through the Chief Scientist Office's two response mode grant committees:

These meet twice per year and their role is well-known across the health and care research community in Scotland. Applications on qualitative research on the impact of living with a neurological condition are welcomed. Any such applications would go through the CSO's standard independent expert review process to enable funding decisions to be made.

The Chief Scientist Office partnered with the Department of Health and Social Care and the Medical Research Council to fund a James Lind Alliance Priority Setting Partnership (JLA PSP) on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). This used standard JLA methodology to work with clinicians, patients and carers to identify the most important areas for research. The outputs of the ME/CFS PSP were published in May 2022 and represent an important resource for the ME/CFS community, together with researchers and research funders:

Commitment 13 in the relates to the support of research into neurological conditions

Action to support Commitment 13 of the Neurological Care and Support: Framework for Action 2020-25 is detailed in the response to Parliamentary Question S6W-13711 on 23 January 2023. All answers to written Parliamentary Questions are available on the Parliament's website, the search facility for which can be found at /chamber-and-committees/written-questions-and-answers