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Chamber and committees

Official Report: search what was said in Parliament

The Official Report is a written record of public meetings of the Parliament and committees.  

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Dates of parliamentary sessions
  1. Session 1: 12 May 1999 to 31 March 2003
  2. Session 2: 7 May 2003 to 2 April 2007
  3. Session 3: 9 May 2007 to 22 March 2011
  4. Session 4: 11 May 2011 to 23 March 2016
  5. Session 5: 12 May 2016 to 5 May 2021
  6. Current session: 12 May 2021 to 3 May 2025
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Displaying 1156 contributions

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Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

My understanding is that the UK bill refers to conditions that are untreatable, rather than ones that people cannot recover from, which is the language that the Scottish bill uses. Does that make a difference?

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Some people can refuse treatment, but they might be treatable. For example, they could receive chemotherapy to extend their life for another six weeks, but they might say, “I don’t want to go through that.” I am trying to explore the difference in definition between untreatable and unrecoverable.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Okay. I think that that is covered.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Dr Wright, I am processing the information that you gave about whether people with chronic obstructive pulmonary disease or heart disease might be considered terminal, as might people with diabetes who struggle because they are in dialysis three times a week or have neuropathic pain or something like that. Are you suggesting that the definition of what constitutes a terminal illness diagnosis is too broad, because it might lead to persons with diabetes, COPD and heart disease being eligible?

Health, Social Care and Sport Committee

Subordinate Legislation

Meeting date: 21 January 2025

Emma Harper

I want to highlight the case of a diet pill that was sold in America and then came to Britain. It has now been relabelled as a poison. That is down to the work that the Food Standards Agency is doing. The diet pill 2,4-dinitrophenol—DNP—is a poison, and it was reclassified in legislation. That is part of the work that you do to highlight certain products, which you might then act to ban or to reclassify, which is what happened in that case. Is that correct?

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Dr Wright, I want to pick up on what you said about GPs working behind closed doors. I am a registered nurse and, in my experience, if somebody is given a terminal diagnosis, a multidisciplinary team of specialists will be working with them. That will include haematologists, surgeons, nurse practitioners and physiotherapists—a whole range of specialists will come into contact with the patient. If a patient makes a statement, therefore, in which they say, “I want to end this,” it is not then just going be up to a GP to make a decision behind closed doors.

Quite often, in my experience, if a physician comes to speak to a patient and there is a family member at the bedside, the patient will be asked whether it is okay for the family member to stay or whether they should leave, and it is up to the patient to make that decision. It is about choice and more than one person is making a decision, so I am not sure that I agree that GPs would be working behind closed doors and making a decision in a vacuum with regard to what somebody’s autonomous choice might be. I am thinking about the wider multidisciplinary team and about the decision being part of a care process.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Thanks. I do not want to take over anybody else’s questions, so I will leave it there.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

Last week it came up that somebody might have a terminal illness but also have what might be considered to be a mental ill-health issue; the bill talks about the person having a “mental disorder”. However, somebody can have depression then get a terminal illness, too. That is the sort of thing that, down the line, should be addressed in further guidance—the bill supports the development of guidance—so that the assessment of adequate “capacity” can take into account that some people will have co-existing conditions.

Health, Social Care and Sport Committee

Subordinate Legislation

Meeting date: 21 January 2025

Emma Harper

I will pick up on Joe FitzPatrick’s point about the impact of the new US President on products that will be marketed in or brought to this country. The US Food and Drug Administration has the “Food Defect Levels Handbook”, which sets out acceptable levels of defects in food. That allows certain levels of insect parts, mould, mites, dust and even—dare I say it?—rat poo.

We do not have anything like that in Europe or in the UK. I am assuming that the Food Standards Agency and Food Standards Scotland will be horizon scanning for products that might be brought to the market from the USA for instance. I have concerns about the acceptable level of defects in the products that are coming from America.

Health, Social Care and Sport Committee

Assisted Dying for Terminally Ill Adults (Scotland) Bill: Stage 1

Meeting date: 21 January 2025

Emma Harper

I am a type 1 diabetic, and I do not consider myself terminal.